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Conceptualizing Caregiving Supports for Families Who Have Children with Disabilities: A Concept Mapping Application

장애아동 가족을 위한 돌봄지원 개념화: 개념도 연구법을 활용하여

  • 김유리 (이화여자대학교 특수교육과) ;
  • 최복천 (전주대학교 재활학과)
  • Received : 2017.07.31
  • Accepted : 2017.09.01
  • Published : 2017.09.28

Abstract

Caregiving supports have been provided to decrease caregiving burdens of families of children with disabilities, but there are needs for improving caregiving services. The purpose of this study was to conceptualize content items and domains of caregiving supports from the perspectives of parents and service providers in order to help families of children with disabilities to decrease their caregiving burdens. This study used concept mapping that was useful for service-needs identification and program development. First, focus group interviews with two parent groups and one service provider group were conducted to generate a total of 31 items. Also, they sorted the items in terms of conceptual similarity and rated the items in terms of their needs. Next, the sorting data were analyzed using multidimensional scaling and cluster analysis and the rating data were calculated for mean. The results provided 31 content items in four domains: regular caregiving, activity-based caregiving, parent empowerment for caregving, and strengthening family relationships. All the domains were rated as important to decrease caregiving burdens. This study has practical implications for improving caregiving services and the related policies.

Keywords

Caregiving Supports;Children with Disabilities;Family Supports;Respite Care;Concept Mapping

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