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Satisfaction and Needs of Cancer Patients and Caregivers under Home-based Cancer Patients Management in Jeju

제주지역내 재가암환자관리를 받은 환자와 보호자에게 제공되는 프로그램 만족도와 요구

  • Kim, Hyeon-Ju (Department of Family Medicine, School of Medicine, Jeju National University) ;
  • Huh, Jung-Sik (Department of Urology, School of Medicine, Jeju National University)
  • 김현주 (제주대학교 의학전문대학원 가정의학교실) ;
  • 허정식 (제주대학교병원 의학전문대학원 비뇨기과학교실)
  • Received : 2018.05.14
  • Accepted : 2018.08.03
  • Published : 2018.08.31

Abstract

This study was conducted to improve the quality of home-based cancer management programs through a survey of satisfaction and needs of the program provided by a regional cancer center. From March 2015 to October 2015, we conducted face to face surveys of patients and caregivers enrolled in home-based cancer management. A total of 101 patients, 59 patients and 41 caregivers, were enrolled. Breast cancer was the main cancer and 51 (86%) patients and 36 (85%) caregivers were satisfied with the number of visits for home-based cancer management. For the service application route, 22 patients (37.29%) obtained information through the cancer center publicity paper and 11 caregivers (26.19%) received recommendations from acquaintances. Except for treatment provided directly to the patients, psychological counseling was the most preferred, and satisfaction regarding picnic and cancer education were also high. Satisfaction with the program provided by regional cancer center was relatively high ($4.14{\pm}1.21$ on a 5-point scale). Additionally, satisfaction of the patients was higher than that of the caregivers, but this difference was not significant ($4.29{\pm}1.11$, $3.93{\pm}1.31$, p = 0.141). Self-esteem was higher among caregivers than patients, but this difference was not significant. To improve the quality of life of cancer patients and caregivers, it is necessary to develop customized programs considering patients' economic situations and need for psychological counseling.

본 논문은 일개 지역암센터에서 제공되는 재가암환자관리프로그램의 만족도와 요구에 대한 조사를 통해 프로그램의 질 향상을 높이기 위해 시행하였다. 재가암환자관리에 등록된 된 환자와 보호자를 대상으로 2015년 3월부터 2015년 10월까지 자체적으로 개발된 설문지를 통해 면대면으로 조사를 시행하였다. 환자 59명과 보호자 41명, 총 101명을 대상으로 설문조사가 이루어졌다. 암종에서는 유방암이 주된 암이었으며 재가암환자의 방문회수에 대하여 51명(86%)의 환자와 36명(85%)의 환자 보호자가 만족하였다. 서비스 신청경로는 환자의 경우 암센터홍보지가 22명(37.29%), 보호자의 경우에는 주변사람의 권유가 11명(26.19%)으로 가장 많았다. 환자에게 직접 제공되는 처치를 제외하고 가장 선호하는 것은 심리상담이었으며, 나들이와 암종별 교육의 만족도도 높게 나타났다. 프로그램의 만족도는 5점 척도에서 $4.14{\pm}1.21$로 비교적 높게 나왔으며 환자가 보호자보다 높았으나 통계적으로 의미는 없었다($4.29{\pm}1.11$, $3.93{\pm}1.31$, p=0.141). 자아존중감은 보호자가 환자보다 높았으나 통계적으로 유의하지 않았다. 향후 재가암환자와 보호자들의 삶의 질을 높일 수 있도록 심리상담과 환자의 경제적인 상황을 고려한 맞춤형 프로그램개발이 필요할 것이다.

Keywords

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