Annals of Rehabilitation Medicine

Korean Academy of Rehabilitation Medicine (대한재활의학회)
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Disability Registration State of Children With Cerebral Palsy in Korea

  • Kim, Seong Woo (Department of Physical Medicine and Rehabilitation, National Health Insurance Service Ilsan Hospital) ;
  • Jeon, Ha Ra (Department of Physical Medicine and Rehabilitation, National Health Insurance Service Ilsan Hospital) ;
  • Kim, Yoon (Department of Physical Medicine and Rehabilitation, National Health Insurance Service Ilsan Hospital) ;
  • Choi, Soo Jin (Department of Physical Medicine and Rehabilitation, National Health Insurance Service Ilsan Hospital) ;
  • Youk, Taemi (Research Institute, National Health Insurance Service Ilsan Hospital) ;
  • Kim, Jiyong (Department of Physical Medicine and Rehabilitation, Inje University Ilsan Paik Hospital)
  • Received : 2017.07.14
  • Accepted : 2017.11.24
  • Published : 2018.10.31
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Abstract

Objective To investigate the disability registration state of children with cerebral palsy (CP) in Korea. Methods Based on the National Health Information Database, the disability registration state was examined for brain lesion disability and other possible complicated disabilities accompanying brain disorder in children diagnosed with CP aged up to 5 years old who were born between 2002 and 2008. Results Of children diagnosed with CP, 73.1% were registered as having brain lesion disability for the first time before they turned 2 years old. The younger the children, the more likely they will have 1st and 2nd degree disability. However, when the age of children is increased, such likelihood is decreased. The percentage of children registered as having overlapping disabilities was 7%-20%. Conclusion It is important to establish a more accurate standard to rate disability and provide national support systems for children with CP with various severities and multiple disabilities. By reorganizing the current disability registration system for pediatric brain lesions, the system could serve as a classification standard to provide medical and social welfare services.

Keywords

Acknowledgement

Supported by : National Health Insurance Ilsan Hospital, National Health Insurance Service

References

  1. Gostin LO. The Americans with Disabilities Act at 25: the highest expression of American values. JAMA 2015;313:2231-5. https://doi.org/10.1001/jama.2015.6405
  2. Kim S. The disabled welfare act revision bill and its significance. Health Welf Policy Forum 2007;127:34-40.
  3. Hwang SK. Understanding the new international classification of disability and introduction of the concept of functional disability. Q J Labor Policy 2004;4:128-49.
  4. Kim M, Lee I. The effect of functional status and personal assistance services uses on perceived independence among people with physical disabilities. J Korean Social Welf Adm 2007;20:53-83.
  5. Bax M, Goldstein M, Rosenbaum P, Leviton A, Paneth N, Dan B, et al. Proposed definition and classification of cerebral palsy, April 2005. Dev Med Child Neurol 2005;47:571-6. https://doi.org/10.1017/S001216220500112X
  6. Bottos M, Feliciangeli A, Sciuto L, Gericke C, Vianello A. Functional status of adults with cerebral palsy and implications for treatment of children. Dev Med Child Neurol 2001;43:516-28. https://doi.org/10.1017/S0012162201000950
  7. Hutton JL, Pharoah PO. Effects of cognitive, motor, and sensory disabilities on survival in cerebral palsy. Arch Dis Child 2002;86:84-9. https://doi.org/10.1136/adc.86.2.84
  8. Eunson P. The long-term health, social, and financial burden of hypoxic-ischaemic encephalopathy. Dev Med Child Neurol 2015;57 Suppl 3:48-50.
  9. Kruse M, Michelsen SI, Flachs EM, Bronnum-Hansen H, Madsen M, Uldall P. Lifetime costs of cerebral palsy. Dev Med Child Neurol 2009;51:622-8. https://doi.org/10.1111/j.1469-8749.2008.03190.x
  10. Ministry of Health and Welfare. Disabled Enrollment. Sejong: Ministry of Health and Welfare; 2014.
  11. Kirby RS, Wingate MS, Van Naarden Braun K, Doernberg NS, Arneson CL, Benedict RE, et al. Prevalence and functioning of children with cerebral palsy in four areas of the United States in 2006: a report from the Autism and Developmental Disabilities Monitoring Network. Res Dev Disabil 2011;32:462-9. https://doi.org/10.1016/j.ridd.2010.12.042
  12. Kim S, Lee Y, Hwang J, Oh M, Lee M, Lee N, et al. Survey of disabled persons 2014. Sejong: Ministry of Health and Welfare; 2014.
  13. Voorman JM, Dallmeijer AJ, Van Eck M, Schuengel C, Becher JG. Social functioning and communication in children with cerebral palsy: association with disease characteristics and personal and environmental factors. Dev Med Child Neurol 2010;52:441-7.
  14. Tan SS, Wiegerink DJ, Vos RC, Smits DW, Voorman JM, Twisk JW, et al. Developmental trajectories of social participation in individuals with cerebral palsy: a multicentre longitudinal study. Dev Med Child Neurol 2014;56:370-7. https://doi.org/10.1111/dmcn.12343
  15. Fauconnier J, Dickinson HO, Beckung E, Marcelli M, McManus V, Michelsen SI, et al. Participation in life situations of 8-12 year old children with cerebral palsy: cross sectional European study. BMJ 2009;338:b1458. https://doi.org/10.1136/bmj.b1458