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Study on the Experience and Response of Secondary Disabilities

장애인의 이차장애 발생경험 및 대응에 관한 연구

  • Jeon, Ji-Hye (Department of Social Welfare, Incheon National University) ;
  • Nam, Ji-Hyun (Department of Social Welfare, Incheon National University)
  • 전지혜 (인천대학교 사회복지학과) ;
  • 남지현 (인천대학교 사회복지학과)
  • Received : 2020.03.09
  • Accepted : 2020.04.20
  • Published : 2020.04.28

Abstract

The secondary health status of the disabled is more vulnerable due to the aging of the disabled, the nature of primary disabilities, and social and environmental disability suppression and stress. Therefore, this study aimed to examine the experiences of secondary disabilities of the disabled and how they responded when secondary disorders occurred. A total of 13 people with severe disabilities with secondary disabilities were interviewed in a focus group and analyzed by applying phenomenological research methods. As a result of the analysis, people with disabilities were experiencing secondary disorders due to variations in the experiences of aging and primary disorders, management problems and life accidents in the primary disorder, misunderstanding of the labor market for disorders and health, misunderstanding of risks of secondary disorders and lack of prevention. In response, people with disabilities live alternatively between body and work, body and academic, try to prevent worsening of secondary disabilities at the individual level, continue to enter the hospital, or choose a life that puts health first. While experiencing secondary disabilities, people with disabilities experienced the threat of life, recognized life as having to endure and fought to the end, acknowledged the difference between the disabled and non-disabled people, and standed aloof from their ongoing secondary disability. It also requested institutional support. Based on the results of this study, medical-level measures, institutional support measures in the labor market, and social welfare practices were discussed.

장애인구의 고령화나 일차장애의 특성 및 사회환경적인 장애억압과 스트레스로 인해 장애인의 이차적 건강상태는 더욱 취약하다. 이에 본 연구에서는 장애인의 이차장애 경험이 어떠하며, 이차장애 발생시 어떻게 대응하였는지 살펴보고자 하였다. 총 13인의 이차장애를 가지고 있는 중증장애인을 초점집단면접하였으며, 현상학적 연구방법을 적용하여 분석하였다. 분석결과, 장애인들은 노화와 일차장애의 경험의 변주, 일차장애 관리문제와 생활사고, 장애와 건강에 대한 노동시장의 몰이해, 이차장애 위험에 대한 이해 및 예방부족 속에서 이차장애 발생을 경험하고 있었다. 이에 대한 대응으로, 장애인은 몸과 일, 몸과 학업사이에서 양자택일을 하거나, 개인차원에서 이차장애 악화를 예방하고자 애쓰거나, 병원 출입을 계속해나가거나 건강을 최우선으로 하는 삶을 선택하는 등 삶의 조율을 끊임없이 해나가고 있었다. 이차장애를 경험하면서 장애인들은 생의 위협을 경험하고, 삶을 끝까지 견디고 싸워내야 하는 것으로 인식하기도 하였고, 장애인과 비장애인의 다름을 인정하고, 이차장애를 겪어내야 하는 삶에 초연해지기도 하였으며, 사회제도적 지원을 요청하기도 하였다. 본 연구 결과를 바탕으로 의료적 차원의 방안, 노동시장에서의 제도적 지원 방안, 사회복지 실천상의 지원방안에 대하여 논의하였다.

Keywords

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