• Title/Summary/Keyword: The Mother of a Handicapped Child

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The Influence of the Degree of Cooperation of the Spouse Perceived by the Mother of a Handicapped Child on Parenting Stress: Mediating Effect of Parenting Efficacy (장애아동 어머니가 지각하는 배우자의 협력정도가 양육스트레스에 미치는 영향: 양육효능감의 매개효과)

  • Koh, Kang-Ho
    • The Journal of the Korea Contents Association
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    • v.18 no.9
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    • pp.273-283
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    • 2018
  • The purpose of this study is to examine the degree of cooperation of the spouse perceived by the mother of a handicapped child on parenting stress and find out if there is a mediating effect of parenting efficacy between the degree of cooperation of the spouse and parenting stress. For such a purpose, this study surveyed 145 mothers of handicapped children who are using the day care center exclusive for handicapped children and analyzed their responses. The results show that, firstly, the degree of cooperation of the spouse perceived by the mother of a handicapped child has direct influence on the parenting efficacy. Secondly, the degree of cooperation of the spouse perceived by the mother of a handicapped child has direct influence on parenting stress. Thirdly, there is a mediating effect of parenting efficacy between the degree of cooperation of the spouse and parenting stress, which means that parenting efficacy increases as the mother perceives that she is receiving more cooperation of the spouse in the process of raising the child and the increased parenting efficacy has an influence on the reduction of parenting stress.

An Ecological Study on Parenting Stress of Mothers with Handicapped Children (장애아 어머니의 양육 스트레스에 관한 생태학적 연구)

  • 하수민;윤종희
    • Journal of the Korean Home Economics Association
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    • v.40 no.10
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    • pp.191-200
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    • 2002
  • The purpose of the study was to investigate parenting stress of mothers with handicapped children. The study employed an ecological model. Data were collected from 142 mothers of handicapped children enrolled in early childhood education classes at welfare facilities in Seoul, Korea. The main results of the study were as follows: 1. The parenting stress of subject mothers was at a severe level. 2. The hierarchical regression analysis yielded the results that mother's depression(β=.383, p<.001), the degree of child's handicap(β=.307, p<.001), child's age(β=.274, p<.01), and mother's participation at parent education program(β=.176, p<.05) were significant factors in explaining mothers' parenting stress. The research model explained 45% of variance.

A Study of Burden and Social Support in Mothers of Handicapped Children (장애아 어머니의 부담감과 사회적지지에 관한 연구)

  • Jun, Hoa-Yun;Kwon, Hye-Jeoung;Kim, Sang-Jin
    • Journal of Korean Physical Therapy Science
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    • v.4 no.2
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    • pp.439-452
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    • 1997
  • Mothers of handicapped children experience many problems and difficulties related to the child's prolonged dependency and demands for special care. Social support can be identified as stress-relieving factor, social support is considered to decrease the amount of negativeness in an individual or family. This study attempted to identify the level of burden and social support in mothers of children who are handicapped, and to determine whether social support is an effective strategy for burden relief in these mothers. The method used in the study was a correlational descriptive survey using a questionnaire. The subjects for the study were 42 mothers who have the handicapped children, between two to twelve years of age, being treated at S General Welfare House for Handicapped and S Rehabilitation Center in Seoul. The data were collected during 1 month from March 20 to April 20, 1996. The instruments used for this study was a structured questionnaire which was the Burden scale developed by Suh Mihae and Oh Kasil(1993) and the PRQ(Personal Resource Questionnaire) scale developed by Brandt & Weinert(1981). The collected data were analyzed using the SPSS computer program, yielding frequencies, percentiles, means, standard deviations, $x^{2}$-test, Pearson's correlation coefficienct, t-test and ANOVA. The results of this study are as follows ; 1)The range of age in the subjects was $29{\sim}44$ years, the range age in the handicapped children was $2{\sim}12$ years. 2) The mean score of burden, for the mothers of the handicapped children was 2.75(standard deviation was 0.47) of a possible total of 5. 3) The mean score of social support, for the mothers of the handicapped children was 4.99 (standard deviation was 0.59) of a possible total of 7. 4) There was an negative correlations hip between burden level and the social support, but there was no statistically significant correlationship between burden level and the social support(r = -.2252, p = .076) 5) In the general characteristics influencing on the burden level was significantly related with the sex(t = - 2.87, p = .007) and the degree of child's handicap level(F = 11.8680, p = .000l). In the general characteristics influencing on the social support was significantly related with the family(husband) support(F = 3.5199, p = .0240). There were significant differences in the mother's levels of burden depending upon the severity of child's handicap. In other words, the degree of mother's burden was directly proportionate to the degree of child's handicap level. There were significant differences in the mother's levels of social support depending upon the family(husband) support. In conclusion, on the basis of the results of this study, there was no statistically significant correlationship between burden level and the social support. Above results suggest that strategies for the intervention programs in diminishing the mother's burden and reinforcing the social support.

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The Experience of Caring by Nursing Students in Handicapped Children (간호 학생의 장애아 돌봄의 경험)

  • Jung Hyang Mi
    • Child Health Nursing Research
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    • v.3 no.2
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    • pp.203-218
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    • 1997
  • Caring is the essence and it is the central and unifying domain for the body of knowledge and practice in nursing. However a clear conceptualization of what caring in nursing does not yet exist. The purpose of this study is to research the phenomenon of caring by obtaining verbal description of the experience of caring in handicapped children, to provide basic information for developing theory of caring, and to teach the humanism centered education. The study design was a descriptive study using phenomenological method. The subjects for this study were 26 nursing students who cared for handicapped children in S rehabilitation center from August, 24 to October. 29 1994. Van kamm's phenomenological method was used for the analysis of the datas. The results are as follows : The experience of caring was classified with 15 common elements and 61 descriptive expressions from 120 raw data. The common elements were , , , , , , , , , , , , , .

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Comparison of Stress Between the Mother and Father Who Have Children (운동발달장애아 어머니와 아버지의 스트레스 비교)

  • Song, Ju-Young
    • Physical Therapy Korea
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    • v.5 no.2
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    • pp.65-80
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    • 1998
  • Parents of handicapped children are experiencing difficulties in their children's care, social isolation, change of life style and lirnited leisure time. Because the parents should take care of the children's daily life, they have lots of psychological and physical stress. Chronic stress of parents puts stress to the other family members and affects the development of children with handicap. The purpose of this study were to identify the level of stress in each of parents of children with motor problem, the characteristics of the children and general information related with the children, and to analyse the stress by reasons. Specially organized questionnaire were used for an investigation method. "Test of stress in mother who has children with chronic illness" by Kim Hee-soon were modified and used. The questionnaire answered by 43 mothers and 35 fathers were analyzed. Data analysis includes frequency analysis, Pearson correlation coefficients, paired-samples t-test and MANOV A by SPSSWIN. The results were as follows: 1) Degree of handicap was most moderate (46.5%), level of motor development was most pull to walk (34.9%), and combined handicap was 69.8%. 2) Sexual distribution represented that 51.2% male and 48.8% female. The cost of physical therapy was 69.8% in no more than 100,000 won. 3) The mean of age, for the mother was 32.8 years and 35.3 years. Level of motor development that mother and father expect was 88.4%, 83% walk alone. 4) Both mother and father experienced stress in other of Part II (changes in father was the illness status of the child and difficulty in taking care of child), Part III (prognosis of the child's condition), Part I (social-personal relationships and the responsibility of the care givers). In the total score of stress, mother's stress is indicated higher level than father's stress. 5) There was no correlationship between characteristics and stress of mother and father. 6) There was no statistically significant difference between characteristics and related general information of children with handicap and stress of mother and father. As a results, the mother of children with handicap are experiencing more stress than the father. Both of parents have the most difficulties in the changes in the illness status of the child and difficulty in taking care of child. This study can be used as resources of education, therapy and counselling for children with handicap and their parents. This study, also, can be used to encourage the quality of Iife for the children with handicapped and their family.

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Uncertainty, Social Support & Powerlessness in Mothers of Handicapped Children (장애아 어머니의 불확실성, 사회적 지지 및 무력감)

  • Park Eun Sook;Oh Won Oak
    • Child Health Nursing Research
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    • v.5 no.2
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    • pp.151-166
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    • 1999
  • The purposes of this study were to measure the degree of perceived uncertainty, social support & powerlessness, to examine the relationship between the perceived uncertainty, social support & powerlessness and then to find the predictors of powerlessness in mother's of handicapped children. The subjects of this study consist of 102 mothers of handicapped children, registered at rehabilitation & handicapped children school. Data was collected from September 1998 to March 1999. The tools used in this study were Mishel's the Parents' Perception of Uncertainty Scale (28 item, 4 likert scale), Miller's Powerlessness measurement Scale(28 itewt 4 likert scale) & Cohen's Interpersonal Support Evaluation List (40 items, 4 likert scale). Data was analyzed by t-test, ANOVA, Duncan comparison, Pearson Correlation coefficient & Stepwise multiple regression Results of this study are summarized as follows : 1. Mothers perceived their uncertainty to be slightly high(Mn 2.50). The degree of perceived uncertainty by the four components were followed as : lack of clarity(2.69), unpredictability(2.56), ambiguity(2.56) & lack of information(2.46). The degree of perceived uncertainty of the mothers of handicapped children revealed to be influenced significantly by age of children, admission experience, disability types of children. 2. The degree of mothers' powerlessness was measured to be slightly high(Mn 2.14). The degree of perceived powerlessness of the mothers with handicapped children revealed to be influenced significantly by age of children, duration of illness admission experience,8E marital status of the mothers. 3. Mothers perceived their social support to be slightly high(Mn 2.71). The degree of perceived social support revealed to be influenced significantly by sex of children, married state of mothers. 4. Mothers' uncertainty was related positively to the mothers' powerlessness(r=.33, p=.0008). And also mothers' powerlessness was related inversely to social support(r=-.50, p=.0001). But, mothers' uncertainty was not related to social support significantly. 5. To analyze the variables which affect powerlessness, stepwise regression was implemented. As a result, about 61% of the powerlessness were explained by social support, marital status of the mothers and perceived uncertainty. Based upon these results, it is recommended that the nurses, who are caring handicapped children and their families, provide various support programs for them to overcome their difficulties. Also programs which decrease the uncertainty & powerlessness used social support multidimensionally & individually are recommended to be developed.

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The relationships between the realities of child's dental caries and guardian's acknowledgments and managements (장애아동 보호자의 구강건강에 관한 인식도와 장애아동 치아우식경험과의 관련성)

  • Gu, Nam-Hee;Lee, Hyung-Suk;Park, Chun-Man
    • Journal of Korean society of Dental Hygiene
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    • v.1 no.1
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    • pp.1-17
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    • 2001
  • This study was tried to suppose the necessity for the participations of the guardians or parents into dental health educations and for developing an educational program on the control of denial health in order to improve the dental health of handicapped children. For this research, it was investigated by a survey on the actual condition of dental health with an object of handicapped children, and simultaneously by analyzing the relationships between the realities of child's dental caries and guardian's acknowledgments and managements with regard to the dental health of the children. The 209 children and their guardians being in special school for the handicapped were surveyed about the actual conditions of dental health from 15 May to 30 June 2000. 1. The average of DT, MT, FT and DMFT index were 2.46, 0.13, 1.18 and 3.78, respectively. 2. As the parents' educational level (p<0.05) and economical incomes were high, the proportions the DMFT index were low (p<0.05). As the father of the handicapped children had a duty, the DMFT index were lower than the opposite case that the father had no duty. However. in the case of their mother, the presence of the duty has not showed any relationships with the DMFT index. And it was revealed that there was a tendency that the lower age of the parents showed the lower proportions (p<0.05) and index (p<0.001). 3. There was no meaningful differences for the DMFT index in the comparison between the children who can brush themselves or not, even though the children who can brush themselves showed relatively and slightly lower DMFT index than the children who can't do it themselves. 4. More frequent observations on the children's dental conditions by the parent resulted in the lower DMFT index(p<0.01). 5. As the parent had relatively more knowledges about the dental disease. the DMFT index were low. Therefore, as it was considered form these results, the parent should be required more positive participations for the improvement of their children's dental health. For promoting this participations, it must be required the development of educational programs and political services for the parent or guardians in order to improve the attendance into the educations.

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Lived experience of mothers who have child with cerebral palsy (뇌성마비아 어머니의 경험)

  • Lee Hwa Za;Kim Yee Soon;Lee Gee Won;Gwan Soo Za;Kang In Soon;An Hea Gyung
    • Child Health Nursing Research
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    • v.2 no.1
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    • pp.93-111
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    • 1996
  • The purpose of the study is to identify the lived experience of mothers who have children with cerebral palsy in order to understand their agony. Moreover, the result of study was to find some nursing intervention for disabled children and their mothers. For this purpose, ten mothers who are willing to cooperate with this research were selected at random from those who have children with the cerebral palsy, currently using the municipal facilities for the handicapped with cerebral malfunction. Data collection was done from October 4, 1994 th December 31, 1994. The data were collected by asking the mothers mentioned above with some unstructured open-ended questions, recorded on the tapes with permission by the interviewee in order to prevent missing of the interviewed contents. These collected data have been substantiated and properly analyzed on the basis of phenomenological approach initiated by Colaizzi's method. The results and validity are proved to be credible by means of the individual checking of the interviewed mothers. The results of this study are as follows : 1. When the mother is first informed of the diagnosis of cerebral palsy on her child, she usually misses the crucial timing needed for proper treatment of the child's disorder because she is notified through the doctor's indifference and his apparently inactive, matter-of-fact attitude. At first she suspects the doctor's diagnosis and tries to attribute it to the unknown cause from a certain genetic problem and then she quickly wants to deny the whole situation that her child is really suffering from the cerebral palsy. The reality is too much for her to accept as it is and she would not believe her child is abnormal. Therefore, she even attempts depend on the power of God for its solution. 2. The mother, who goes thorough this kind of uncommon experiences, is totally devoted to the treatment and care of the child and completely ignores her own life and happiness. At the same time, she feels sorry for her other normal children she believes having not enough care and concern. Also, she feels sorry for the sick child when the child's brothers or sisters show special concern for the patient out of sympathy. It is sorry and not satisfied for her that the child is growing with abnormality and neighbor other around have inappropriate attitudes. Likewise, she is discontent with her husband's lack of concern about the child's treatment. She believes that the health care system in this society isn't fulfilling its due purpose. In the state of her utmost distress and anxiety, she always feels the need of competent consultants, and is angry about that her child is treated as an abnormal being, she is trying to hide the child from other people and to make him or her disappear, if possible. Although she doesn't have harmonious relation with her husband, she id happy when he shows his affection for the child and she feels relieved and thankful when the relatives don't mention about the child's condition Since the child's overall status of health is continuously in unstable conditions, requiring her all-time readiness for an emergency, she feels guilty of her child's illness toward the fEmily members as if it was her own fault to have borne such an abnormal child and she feels responsible for the child morally and financially if necessary Because her life is centered on taking care of the child, she cannot afford to enjoy her own life and happiness. She is a lonely mother, fatigued, with no proper relationship with other people around her. With this sense of guilt and responsibility as a mother of an unusual disease, she has no choice but to grieve her destiny from which she is not allowed to escape. 3. Nevertheless, the mother with the child suffering from the cerebral palsy does not easily give up the hope of getting her child cured and she believes that in the long run, though slower than hoped, her abnormal son or daughter will be eventually cured to become a normal sibling someday. This kind of hope is sustained by the mother's strong faith coming from observing the progress of other similar children getting better. Sometimes she is encouraged to have this faith by other mothers who share the same painful experiences, believing that her child will improve even more rapidly than others with the same palsy. Full of hope, she painstakingly waits for the child's healing. Moreover, she plans to have another child. she thinks that the patient child's brothers and sisters only can truly understand and look after the patients. However, when she notices that the progress of other children under the treatment does not look so hopeful, she is distressed by the thoughts that her child may never get well. Too, she is worried that the patient's brother or sister will be born as the same invalid with the cerebral disease. She is discouraged to have another baby as much as she is encouraged to. She is also troubled by the thought that in case she has another baby, she will have to be forced. to neglect the patient child, especially when she does have an extra hand or some reliable person to help her with taking care of the patient.

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A Study on Experience of Day Hospital and Day Care Service Use of The Mothers with Severely Disabled Children (중증장애아동 어머니의 낮병원 및 보육서비스 이용 경험에 관한 연구)

  • Jeon, Ji Hye;Won, Young Mi
    • Korean Journal of Child Education & Care
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    • v.19 no.1
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    • pp.159-174
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    • 2019
  • Objective: The study wanted to find out what changes the mother, who is the main parent of the severely disabled children, experienced in their lives through the use of day hospitals and child care services, and what difficulties they had, and discussed policy practical improvements that could satisfy both the medical and developmental needs of the severely disabled. Methods: The participants of the study were 9 mothers of a child with severe disabilities who had experience using hospitals and kindergarten. They were recruited by snowball sampling method. Focus group interview and individual interview were conducted. Results: As a result of the analysis, the mother of severely handicapped child gradually began to seek the balance of life as her child grew and became aware of the institution other than the day hospital. - (e.g) Although I was distracted and worried for the first time, I was gradually adjusting to the time away from my child thinking positively. Children with severe disabilities were also positively influenced by various experiences. They become to show som positive behavior or feeling such as brightening facial expressions or smile as they were using daycare centers or kindergartens in addition to daytime hospitals. Conclusion/Implications: Through the results of this study, comprehensive policy proposals on child care, welfare, and medical care were discussed.

The Effect of the Health Education Program for Mothers with Developmental Disabled Children on Health Care Behavior and Parenting Stress (발달장애 아동을 위한 어머니 건강교육프로그램이 자녀 건강관리행위와 양육스트레스에 미치는 효과)

  • Kim, Hye-Young
    • Journal of the Korea Academia-Industrial cooperation Society
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    • v.17 no.6
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    • pp.338-346
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    • 2016
  • This study was conducted to develop a health education program to help mother's cope with developmentally disabled children's health, and to test the effects of the program. The contents of the health education program were based on the results of a discussion with experts and previous studies. The program consisted of two parts, physical health and psychosocial health, which were measured over 4 weeks. The results of the study showed that the program helped mothers improve the level of health care and reduce parenting stress level. These findings suggest that studies for handicapped children's health should be conducted in the future using an interdisciplinary approach.