• Title/Summary/Keyword: data registry

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Standards Registry for Data and Metadata on Earthquake and Volcanic Disaster- Strategies and Directions in Implementation: Implications for Geomorphological Studies (지진 화산 재해 관련 데이터 및 메타데이터 표준 등록소의 개발 방향과 과제: 지형조사 분야에 대한 시사)

  • Chang, Eunmi;Park, Yongjae;Park, Kyeong
    • Journal of The Geomorphological Association of Korea
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    • v.27 no.1
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    • pp.91-102
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    • 2020
  • Earthquakes and volcanic information can vary in type and extent, from raw data to processed data. In order to be able to analyzed and modeled, information needs to be opened in any formats and provided with metadata from the Korea Meteorological Agency and related data production organizations. We propose the metadata and data registry related to volcanic disasters in a form that can be used in conjunction with the Korea Meteorological Administration system that manages earthquake and volcanic data in Korea. The standard registry refers to a virtual system that checks the standards developed for over 20 years in the field of geographic information and receives information registration to grasp the location of geographical features. It is not only data from natural disasters such as earthquakes and volcanoes, but also national environmental survey results, and the cooperation system with other organizations dealing with national land information is also important, so a registry that creates and operates standards is necessary. Therefore, creating and operating the standard registry is necessary and expected to contribute to academic openness and data-driven policy.

Population-Based Cancer Registration in Indonesia

  • Wahidin, Mugi;Noviani, Rini;Hermawan, Sofia;Andriani, Vita;Ardian, Ardi;Djarir, Hernani
    • Asian Pacific Journal of Cancer Prevention
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    • v.13 no.4
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    • pp.1709-1710
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    • 2012
  • Cancer is a major public health problem in Indonesia, becoming the 7th largest cause of death based on a national survey in 2007, accounting for 5.7 of all mortality. A cancer registry was started in 1970, but it was partial and was stopped mainly because no government body was responsible. Realizing the above situation, the Indonesian government established the Sub Directorate of Cancer Control within the Ministry of Health, with responsibility for developing a national cancer control program, including a cancer registry. A sustainable cancer registry was then started in 2007 within Jakarta Province, first hospital-based but then expanded to be population-based. Steps of cancer registration in Jakarta are data collection, data verification, data validation, data management and analysis, and data publication. Data collection is conducted by health facilities (hospitals, laboratories, primary health centers) at the district/municipal level, with reports to the provincial level. Data are collected passively by holding meetings every three months in the district/municipality. Verification of data is the responsibility of the medical doctor or pathologist in each data source. Data validation is conducted by a team in the cancer registry, consisting of district/municipal/province health officers, pathologists, and registrars. Data management and analyses are conducted by a cancer registry team at the provincial level, assisted by the national team. We use software named Indonesian Cancer Registry System (SRIKANDI) which is adopted from CanReg4 IARC. Data from the population-based cancer registry in Jakarta Province showed the leading cancers among females in 2005-2007 to be breast cancer, cervical cancer, ovarian cancer, colorectal cancer and among males are bronchus and lung cancer, colorectal cancer, liver cancer, pharyngeal cancer, and prostate cancer. The leading childhood cancers are leukaemia and retinoblastoma.

Building Linked Big Data for Stroke in Korea: Linkage of Stroke Registry and National Health Insurance Claims Data

  • Kim, Tae Jung;Lee, Ji Sung;Kim, Ji-Woo;Oh, Mi Sun;Mo, Heejung;Lee, Chan-Hyuk;Jeong, Han-Young;Jung, Keun-Hwa;Lim, Jae-Sung;Ko, Sang-Bae;Yu, Kyung-Ho;Lee, Byung-Chul;Yoon, Byung-Woo
    • Journal of Korean Medical Science
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    • v.33 no.53
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    • pp.343.1-343.8
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    • 2018
  • Background: Linkage of public healthcare data is useful in stroke research because patients may visit different sectors of the health system before, during, and after stroke. Therefore, we aimed to establish high-quality big data on stroke in Korea by linking acute stroke registry and national health claim databases. Methods: Acute stroke patients (n = 65,311) with claim data suitable for linkage were included in the Clinical Research Center for Stroke (CRCS) registry during 2006-2014. We linked the CRCS registry with national health claim databases in the Health Insurance Review and Assessment Service (HIRA). Linkage was performed using 6 common variables: birth date, gender, provider identification, receiving year and number, and statement serial number in the benefit claim statement. For matched records, linkage accuracy was evaluated using differences between hospital visiting date in the CRCS registry and the commencement date for health insurance care in HIRA. Results: Of 65,311 CRCS cases, 64,634 were matched to HIRA cases (match rate, 99.0%). The proportion of true matches was 94.4% (n = 61,017) in the matched data. Among true matches (mean age 66.4 years; men 58.4%), the median National Institutes of Health Stroke Scale score was 3 (interquartile range 1-7). When comparing baseline characteristics between true matches and false matches, no substantial difference was observed for any variable. Conclusion: We could establish big data on stroke by linking CRCS registry and HIRA records, using claims data without personal identifiers. We plan to conduct national stroke research and improve stroke care using the linked big database.

Design and Implementation of Integrated Query System for e-Business Registries (e-비즈니스 레지스트리 통합 질의 시스템 설계 및 구현)

  • 김계용;이규철
    • Journal of Information Technology Applications and Management
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    • v.10 no.1
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    • pp.127-146
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    • 2003
  • With the spread of Internet, e-business using Internet technology is being actively developed and operated. Currently, on behalf of the international e-business framework, International standard such as ebXML and Web Service is being advanced. We are able to publish and search business information through ebXML and Web Service and then actual trading between partners is accomplished. By the way, it is Registry that play an important part in e-business. Registry is an e-business infrastructure for enabling building, deploying, and the discovery of business Information. We can do e-business through Registries dynamically and share the resources. Representatives of Registry are ebXML and UDDI used as an international standard. We will meet with some problems when using Registries. ebXML Is focused on B2B collaborations and Web Service Is focused on application integrations. So we must use ebXML and Web Service characteristically, and sometimes use all at need. ebXML and Web Service contain business information by Registry specific way. So When using the services offered by ebXML and Web Service, we should access each Registry by using Registry specific tools. This thesis intended to integrate business information from ebXML Registry and UDDI Registry to accomplish e-business conveniently This thesis defined the common data model as well as integrated query language for integrated access to ebXML and Web Service along with design and implementation of the system.

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A Comparison of the Cancer Incidence Rates between the National Cancer Registry and Insurance Claims Data in Korea

  • Seo, Hee Jung;Oh, In-Hwan;Yoon, Seok-Jun
    • Asian Pacific Journal of Cancer Prevention
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    • v.13 no.12
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    • pp.6163-6168
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    • 2012
  • Although much health services research has been conducted using national health insurance claims data in Korea, the validity of this method has not been ascertained. The objective of this study was to validate the use of claims data for health services research by comparing incidence rate of cancers found using insurance claims data against rates of the national cancer registry of Korea. An algorithm to estimate incidence rates using claims data was developed and applied. The claims data from 2005-2008 were acquired and the patients admitted to hospitals due to cancer in 2008 without admission to hospital from 2005-2007 by the same diagnosis code were regarded as incident cases. The acquired results were compared with the values from the National Cancer Registry of Korea. The incidence rate of all cancers found using claims data was 363.1 per 100,000 people, which is very similar to the 361.9 per 100,000 rate of the national cancer registry. Also the age-, gender- and disease-specific rates between the two data sources were similar. Therefore, national health insurance claims data may be a worthwhile resource for health services research if appropriate algorithms are applied, especially considering the cost effectiveness of this method.

Surveillance Evaluation of the National Cancer Registry in Sabah, Malaysia

  • Jeffree, Saffree Mohammad;Mihat, Omar;Lukman, Khamisah Awang;Ibrahim, Mohd Yusof;Kamaludin, Fadzilah;Hassan, Mohd Rohaizat;Kaur, Nirmal;Myint, Than
    • Asian Pacific Journal of Cancer Prevention
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    • v.17 no.7
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    • pp.3123-3129
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    • 2016
  • Background: Cancer is the fourth leading cause of death in Sabah Malaysia with a reported age-standardized incidence rate was 104.9 per 100,000 in 2007. The incidence rate depends on non-mandatory notification in the registry. Under-reporting will provide the false picture of cancer control program effectiveness. The present study was to evaluate the performance of the cancer registry system in terms of representativeness, data quality, simplicity, acceptability and timeliness and provision of recommendations for improvement. Materials and Methods: The evaluation was conducted among key informants in the National Cancer Registry (NCR) and reporting facilities from Feb-May 2012 and was based on US CDC guidelines. Representativeness was assessed by matching cancer case in the Health Information System (HIS) and state pathology records with those in NCR. Data quality was measured through case finding and re-abstracting of medical records by independent auditors. The re-abstracting portion comprised 15 data items. Self-administered questionnaires were used to assess simplicity and acceptability. Timeliness was measured from date of diagnosis to date of notification received and data dissemination. Results: Of 4613 cancer cases reported in HIS, 83.3% were matched with cancer registry. In the state pathology centre, 99.8% was notified to registry. Duplication of notification was 3%. Data completeness calculated for 104 samples was 63.4%. Registrars perceived simplicity in coding diagnosis as moderate. Notification process was moderately acceptable. Median duration of interval 1 was 5.7 months. Conclusions: The performances of registry's attributes are fairly positive in terms of simplicity, case reporting sensitivity, and predictive value positive. It is moderately acceptable, data completeness and inflexible. The usefulness of registry is the area of concern to achieve registry objectives. Timeliness of reporting is within international standard, whereas timeliness to data dissemination was longer up to 4 years. Integration between existing HIS and national registration department will improve data quality.

A Design and Implementation of the Multilingual RDD Registry (다중언어 RDD 레지스트리의 설계 및 구현)

  • 정상원;오원근;윤기송
    • Journal of Broadcast Engineering
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    • v.8 no.4
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    • pp.381-391
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    • 2003
  • This paper deals nth the Multilingual Registry for the Rights Data Dictionary (RDD), which will be used for the semantic representation of rights on digital contents in MPEG-21 framework. The translation of RDD terms owing to different language populations often lacks the desirable precision. The purpose of this paper Is to demonstrate the Multilingual RDD Registry concept to achieve a more precise and interoperable translation of RDD terms among different DRM systems.

What Roles should Population-based Cancer Registries be Playing in the 21st Century? Reflections on the Asian Cancer Registry Forum, Bangkok, February 2014

  • Roder, David
    • Asian Pacific Journal of Cancer Prevention
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    • v.15 no.5
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    • pp.1895-1896
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    • 2014
  • Cancer registries have fundamental roles in cancer surveillance, research, and health services planning, monitoring and evaluation. Many are now assuming a broader role by contributing data for health-service management, alongside data inputs from other registries and administrative data sets. These data are being integrated into de-identified databases using privacy-protecting data linkage practices. Structured pathology reporting is increasing registry access to staging and other prognostic descriptors. Registry directions need to vary, depending on local need, barriers and opportunities. Flexibility and adaptability will be essential to optimize registry contributions to cancer control.

Auto-Coding of Cancer Registry Data in China

  • Wei, Kuang Rong;Liu, Sheng Chao;Wei, Dongling;Liang, Zhiheng;Chen, Wanqing
    • Asian Pacific Journal of Cancer Prevention
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    • v.17 no.6
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    • pp.3021-3023
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    • 2016
  • The significance, difficulty and strategy of coding cancer data according to international coding standards are discussed, and the concept, methods and realization of cancer data automatic coding in cancer registries in China are introduced in the paper. Coding cancer data automatically with software could not only reduce the time, manpower and workload, while improving the accuracy and efficiency of cancer data coding, but also enhance the validity of cancer registration and the value of cancer registry data, which is of great significance.

Design and Implementation of Sensor Registry Data Model for IoT Environment (IoT 환경을 위한 센서 레지스트리 데이터 모델의 설계 및 구현)

  • Lee, Sukhoon;Jeong, Dongwon;Jung, Hyunjun;Baik, Doo-Kwon
    • KIPS Transactions on Software and Data Engineering
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    • v.5 no.5
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    • pp.221-230
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    • 2016
  • With emerging the Internet of Things (IoT) paradigm, the sensor network and sensor platform technologies have been changed according to exploding amount of sensors. Sensor Registry System (SRS) as a sensor platform is a system that registers and manages sensor metadata for consistent semantic interpretation in heterogeneous sensor networks. However, the SRS is unsuitable for the IoT environment. Therefore, this paper proposes sensor registry data model to register and manager sensor information in the IoT environment. We analyze Semantic Sensor Network Ontology (SSNO) for improving the existed SRS, and design metamodel based on the analysis result. We also build tables in a relational database using the designed metamodel, then implement SRS as a web application. This paper applies the SSNO and sensor ontology examples with translating into the proposed model in order to verify the suitability of the proposed sensor registry data model. As the evaluation result, the proposed model shows abundant expression of semantics by comparison with existed models.